Yay. Finally, travel arrangments have been arranged. Angel Flights pulled through!!! Tomorrow (Tue) we're traveling to Chicago and on Wednesday, NJ has a full round of new MRI scans. It should be interesting to see the difference between the scan that was done 4 yrs ago and now. Plus, neither of the other Neurosurgeons that we saw did complete scans. Of course, unbeknownst to us. (We didn't know any better.) Now we do and are looking forward to the advice and guidance from an expert in Chiari Malformation!
Wish us luck.